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Ireland boasts a wealth of resources and charities dedicated to assisting individuals with cerebral palsy and their families. This guide aims to highlight this invaluable support.
Cerebral palsy refers to a group of neurological disorders that affect movement and muscle coordination. It results from damage to the developing brain, often occurring before, during or shortly after birth, and it can be caused as a result of medical negligence.
Manifestations of the condition vary widely, impacting individuals in different ways.
Charities and support providers work independently or together depending on the needs of the service user. It is not unusual for someone who has cerebral palsy to encounter many, if not all, support providers. This collaborative approach to care ensures that those in need are looked after in the most efficient way possible.
Jack & Jill is a nationwide charity providing in-home nursing care and respite support for children up to the age of 6 with severe to profound cognitive delay.
This may include children with brain injury, genetic diagnosis, cerebral palsy and undiagnosed conditions. Another key part of their service is end-of-life care for all children up to the age of 6, irrespective of diagnosis.
Their role includes listening to parents and seeking solutions which can sometimes mean making representations to other health care professionals and the government. The aim of the service is to reduce some of the worries/difficulties that come when caring for a child with additional needs while also allowing families to take a break.
Visit Jack and Jill to learn more.
The Cerebral Palsy Foundation is at the forefront of transformative research and innovation, collaborating with leading researchers and organisations globally. Their mission is to drive significant advancements in the treatment and understanding of cerebral palsy, focusing on translational research that can be quickly moved from the laboratory to the patient’s bedside.
The Foundation also plays a crucial role in developing educational materials and resources that promote understanding and support for individuals with cerebral palsy and their families.
Visit The Cerebral Palsy Foundation to learn more.
Enable Ireland is a national organisation providing essential services to children and adults with disabilities across Ireland. Their services cover a broad spectrum, from early years through adulthood, focusing on enabling each individual to achieve their potential and live as independently as possible.
Enable Ireland’s teams of therapists, educators and support staff work collaboratively with families to create personalised plans that address the physical, educational and social needs of individuals with cerebral palsy. They also advocate for greater inclusion and accessibility within the community and workplace.
Visit Enable Ireland to learn more.
Ireland competes in the IFCPF competitions including Inter-Continental Games, European Championships and World Championship. Both the Irish men’s and women’s teams regularly appear in the top 10 in the world rankings.
Run by the Football Association of Ireland (FAI), the various programmes are perfect for children and adults with Cerebral Palsy that have a passion for sport and a willingness to reach their full potential.
You can learn more at IFCPF.
This Facebook group serves as a vibrant online community for families affected by cerebral palsy in Ireland. It’s a space for sharing experiences, advice and resources, offering emotional support and practical tips from people who truly understand the challenges and joys of living with cerebral palsy.
The group fosters a sense of belonging and provides a platform for advocacy and awareness, highlighting the needs and achievements of the cerebral palsy community.
You can join by visiting Cerebral Palsy Ireland Family Group on Facebook
Augustus Cullen Law specialises in providing comprehensive legal support to families affected by cerebral palsy due to medical negligence. Our solicitors are experts in securing the compensation and support necessary for your child’s needs, including medical care, therapy, education and home adaptations.
You can learn more by visiting Cerebral Palsy Claims.
If you know of any charities or support providers that are not included on this list and you think they should be, or if you would like to know more about our services, Contact Us today.
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